Very proud of our new documentary on rare disease — the families and the path toward a cure. Join us at 7 pm ET tonight on @CNBC.
Mar 19, 2026 · 6:03 PM UTC
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@BeckyQuick @CNBC Becky - the Huntington’s disease community needs your help! Please cover the story of Makary and Prasad having received $4.7M of funding from Arnold Venture and rejecting life saving therapies for Americans!!
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@BeckyQuick@BeckyQuick, for y@BeckyQuick in sharing your daughter Kaylie’s journey with SYNGAP1 on Squawk Box and launching the powerful new documentary “CNBC Cures: Defying Rare Disease.” As a physician who listens during my morning drive, I deeply admire your bravery in spotlighting rare diseases, the families, and the path to cures. Your mission inspires hope,
we’ll find them, one disease at a time. Proud of this work! 🙏❤️
we’ll find them, one disease at a time. Proud of this work! 🙏❤️
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@BeckyQuick @CNBC Kudos to you for doing this and blessings to your family. 🙌
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@BeckyQuick @CNBC @beckyquick father of 4 from 🇨🇦, “i wish she had a friend” was so powerful and resonating. I would like to contribute what I can. Send a link.
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@BeckyQuick @CNBC Thank you and I hope this contributes to positive regime change at our politicized FDA.
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@BeckyQuick @CNBC I want you in my foxhole Becky. Thank you for shining a light on this!!!
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@BeckyQuicke@CNBC a challenge for families as well as for physicians treating them. You often don't have a lot of information. In Anesthesia this can be quite troubling. The German Society of Anesthesia has a very interesting project called Orphan Anesthesia were physicians can share their expertise with rare diseases. It's a great resource and a lot of people don't know about it. I've placed the link below:
orphananesthesia.eu
orphananesthesia.eu
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@BeckyQuick @CNBC Great show thank you for bringing this to our attention. Not a dry eye at home while watching.
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@BeckyQuick @CNBC You should be proud of yourself. You are giving hope to others when there is none. 🙏
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@BeckyQuick @CroftHelima @CNBC Thank you for sharing your family’s story..those of us with children with difficult medical conditions are blessed with our angels…but it is not always easy.
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@BeckyQuick @CNBC Becky your story is amazing, you are so strong and courageous! You have made such a difference not only for Cailey but even for those who don't know they will have to fight this battle. My heart pours out for you.
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@BeckyQuick @CNBC The show was so good Becky! Thank you to you and your husband for shining a light on these rare diseases. Children are suffering from my granddaughter. Is one of them and my grandson is autistic. Keep up this great fight!
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@BeckyQuick @CNBC Truly great special, extremely inspiring, so much good depth. Seems conceptually possible they could use animals, to treat gene sequances by marking them w/viruses, then follow up virus/bacteria genes deliveries &or meds at targets. Under twenty years, many cures have to think
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@BeckyQuick
@CNBCy@BeckyQuickour powerful new documentary “CNBC Cures: Defying Rare Disease.” Thank you for courageously sharing your family’s journey with your daughter’s rare genetic condition and shining a light on so many other brave families fighting for answers.
Your work beautifully captures both the profound challenges and the inspiring path toward cures.
By bringing these stories to prime time, you are raising vital awareness and hope for the rare disease community.
Proud to support this important effort!
@CNBCy@BeckyQuickour powerful new documentary “CNBC Cures: Defying Rare Disease.” Thank you for courageously sharing your family’s journey with your daughter’s rare genetic condition and shining a light on so many other brave families fighting for answers.
Your work beautifully captures both the profound challenges and the inspiring path toward cures.
By bringing these stories to prime time, you are raising vital awareness and hope for the rare disease community.
Proud to support this important effort!
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@BeckyQuick @CNBC Very good segment @BeckyQuick . Always incredibly sad when a child is sick. You pray that your child is healthy, but no guarantees. God bless the parents who go through this challenge. 🙏
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@BeckyQuick @CNBC Exceptional documentary! Kudos to you and your family for sharing your journey and to the other families you profiled!
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@BeckyQuick @CNBC Congrats on your beautiful daughter and thank you for sharing your story. God bless your wonderful family!
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@BeckyQuick @MCaruso_Cabrera @CNBC SO PROUD of you 💐, the 🌎 will learn
Tonight at 7:00 🕖 on CNBC, SO MUCH Tonight.
🫵🏻 My Dear Friend, are going to make a
DIFFERENCE in SO MANY LIVES‼️💯🙏👏
🥂🌷🫧💙🇨🇦🇺🇸🤗
Tonight at 7:00 🕖 on CNBC, SO MUCH Tonight.
🫵🏻 My Dear Friend, are going to make a
DIFFERENCE in SO MANY LIVES‼️💯🙏👏
🥂🌷🫧💙🇨🇦🇺🇸🤗
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@BeckyQuick @CNBC Becky what a powerful, informative and interesting show. Thanks for doing it and giving parents hope.
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@BeckyQuick @CNBC This documentary was exceptional. It touched the heart of so many people, especially those who have children with any type of disability. As a mother of a son with mental illness it really hit Home when you spoke about hitting the milestones. Enlightening. Emotional. Thank you!
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@BeckyQuick @IAmSophiaNelson @CNBC ❤️as someone living with rare disease desperate for researchers to find me a cure to stop my lysosomal storage disease from progressing - thank you
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@BeckyQuick @CNBC I look forward to watching it. You’re doing great work bringing attention to rare diseases and the families who struggle to get their kids the help they need. Keep going!! @BeckyQuick
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@BeckyQuick @CNBC Thank you, @BeckyQuick for this special! I relived so much of our journey with my daughter's diagnosis with Fanconi Anemia back in 2011 as you and your husband were talking! There is so many unknowns, but as someone said during the show, this is the golden age of research!!!
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@BeckyQuick I once suffered from a rare disease. I found a test in my research I requested my doctor to order. Luckily, she did as we found the cause to my rare disease diagnosis. I have been in remission since 2018. Now my book is helping patients and doctors from all over the world.
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@BeckyQuick @CNBC Prayers and hope and faith and you are awesome parents ❤️🙏💯
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