KL (for HD) retweeted
He killed people when he did this and he’s admitting to it.
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If I went to Russia, I would be jailed and held hostage as a POW for criticizing Russia.

I went to Ukraine as a critic and the President of Ukriane invited me to his palace and allowed me to interview him.

After I interviewed @ZelenskyyUa, Russian state media, which is controlled by Putin and the Kremlin, was calling for me to be assassinated and then they were retweeting IRGC propaganda videos that called for Islamic terrorists to shoot me in the head.

Ukraine and Russia aren’t the same.
@LauraLoomer Ok, now you could go to Russia and verify what is happening there, problem both sides
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KL (for HD) retweeted
Obama on Pete Hegseth:

You've got the defense secretary who's squarely focused on the jawlines and testosterone levels of our troops. How much time do you think this Defense Secretary spends looking at himself in the mirror in the morning?
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KL (for HD) retweeted
Replying to @elonmusk
@elonmusk Most pathetic trillionaire in history
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No, @elonmusk, the U.S. stopped funding Ukraine last year. In fact, U.S. companies make money on American weapons for which we Europeans pay.
The more you meddle in our politics and the more you play politics with your products, the more you damage your brand.
And some of that US taxpayer money comes back through multiple laundry machines to fund political campaigns in America, which is why you see some politicians caring more about Ukraine than America!
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KL (for HD) retweeted
This ad is brutal.
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KL (for HD) retweeted
If Elon is doing that to Starlink, he is definitely doing it to X
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KL (for HD) retweeted
There is something deeply wrong with a political system that allows one trillionaire to buy his own personal U.S. Senator.
There is something deeply wrong with Talarico
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KL (for HD) retweeted
Replying to @laurencurehd
@laurencurehd I can’t think of a more deserving voice, Lauren! Your decades of advocacy and unwavering commitment to families affected by Huntington’s disease are exactly what the FDA needs to hear. So proud of you!

💙💜

#HuntingtonsDisease
#RareDisease
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KL (for HD) retweeted
Ukraine is not Russia. That's Putin’s problem – refusing to recognize a separate nation, refusing to recognize a separate country – that's what did him in. He was shown a military operation that was supposed to take three days. We found parade uniforms in their various military vehicles. They were literally marching to a parade. He still doesn't understand and doesn't want to admit that this is a different nation, a different people.

They were advancing on Kyiv from all directions. Their main goal was to seize the capital of Ukraine. They reached Kyiv. They trapped us, and then we started hammering them, and they didn't know what to do about it. They were especially shocked when they drove toward the capital and people were just throwing burning mixtures. People were setting their armor on fire. It wasn't a matter of some general being an idiot. I believe the one who gave the order just didn't fully realize what was happening.

Because what does taking Kyiv mean? When you've taken those towns on the way to Kyiv, you have to leave troops behind to hold those towns. And that takes a huge number of people. It's a pretty large territory. If the people inside offer resistance, then you need an army to hold every town. That was their mistake. They didn't even realize there would be resistance. That was their main mistake. That's it.

From The Diary of a CEO podcast with Steven Bartlett. (1/3)
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KL (for HD) retweeted
Reminder: FDA is holding a hybrid meeting on Oct. 28 from 1-5 pm ET to seek input on its Rare Disease Framework Initiative reimagining the agency’s approach to rare disease drug development. Find out how to register: fda.gov/news-events/fd…
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KL (for HD) retweeted
❤️ I HAVE SOME EXCITING NEWS TO SHARE!

I am incredibly honored and excited to announce that I've been selected to speak in person at the FDA's Rare Disease Framework Public Meeting on October 28th in Silver Spring, Maryland!

This meeting is especially meaningful because it w initiative and recently released white paper, A New Framework for Rare Disease Review.

For someone who has spent so many years advocating for the Huntington's disease community, this opportunity means more to me than I can adequately put into words.

I'm not just an advocate. I'm gene-positive, someone living with the reality of a progressive, rare brain disease. I've watched this disease take so much from people I love, and I know firsthand what is at stake when we talk about treatment development, regulatory decisions, and the time patients have left.

I've spent nearly two decades fighting for a seat at the table. On October 28th, I'll have the privilege of using that seat to help shape a future where the patient voice is not an afterthought, but a foundation of the process.

And that means everything to me. ❤️

The FDA's new Rare Disease Framework Initiative represents an opportunity to rethink how treatments for rare diseases are developed and reviewed, recognizing that rare diseases present unique challenges that traditional approaches don't always adequately address.

It's an opportunity to discuss what evidence is realistically attainable, how we can improve consistency and predictability in regulatory decisions, and how patients can have a meaningful role throughout the process.

But here's the part I really want everyone to hear:

📣 YOU HAVE A SEAT AT THIS TABLE, TOO!

The FDA is inviting public comments on this initiative, and this is an opportunity for patients, caregivers, families, advocates, researchers, and everyone impacted by rare diseases to provide input.

You don't need a medical degree. You don't need to understand every detail of regulatory science.

💪Your lived experience IS expertise. And your voice deserves to be heard. 💙

📣 HOW TO GET INVOLVED:

📝 Submit a public comment:
regulations.gov/docket/FDA-202…

Docket #: FDA-2026-N-12214

📅 Deadline to submit comments: December 11, 2026

📖 Read the FDA's new white paper and learn about the initiative:
fda.gov/industry/fda-r…

💻 Learn about the October 28th public meeting and how to attend virtually:
fda.gov/news-events/fd…

I'm excited. I'm humbled. And I'm incredibly grateful for this opportunity.

But more than anything, I'm hopeful about what we can accomplish when patients are genuinely included in shaping the systems that determine our futures.

We have an opportunity to make a difference. Let's not waste it.

Because for those of us living with progressive rare diseases, every day matters. Disease progression can cause irreversible damage. And what we stand to lose isn't just time - it's our independence, our abilities, precious moments with our families, and the futures we're fighting so hard to protect.
❤️ Time Matters. And so do our voices.

#RareDisease #HuntingtonsDisease #FDA #PatientAdvocacy #PatientVoice #TimeMatters #RareDiseaseResearch #RareDiseaseFramework
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KL (for HD) retweeted
The FDA is launching the Neuroscience Advancement and Innovation Nexus (NAIN), a new cross-center program to advance medical products for conditions affecting the brain and nervous system. fda.gov/news-events/pr…
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KL (for HD) retweeted
$BHVN is a huge read-through to $QURE. Congrats on their BLA acceptance.
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KL (for HD) retweeted
How much longer do Huntington patients need to wait for FDA to act on the @uniqure treatment? @MartyMakary and his clown already delayed the treatment by more than a year. Why are the FDA dragging their feet?? @FDA @WhiteHouse @RobertKennedyJr @Christina4HD @FDADrugs @HeidiOverton #Huntingtonsdisease
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KL (for HD) retweeted
Elon Musk—Trump’s oligarch—directly threatens members of Congress who may seek to investigate what he’s been doing behind the scenes in our government and political system.

DOGE, Starshield, campaign $

He wants to wield power without accountability.

But here, the people rule.
Live by the sword, die by the sword.

Those who pick fights with me should understand that I will find out who is really pulling the strings and come for them, not just their puppets …
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KL (for HD) retweeted
So not only can Ukraine and Ukrainians sue Space X/Musk, so too can shareholders. This is a liability disaster and it’s entirely self-inflicted.
SpaceX Investor @GerberKawasaki tells me he’s not only “disgusted…from a humanity perspective” by restrictions on Starlink in Ukraine, but also: “…they've given everybody a reason not to use Starlink, that Starlink isn't reliable for national security for anybody but Trump.”
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KL (for HD) retweeted
Please give a standing O to this guy for speaking truth to power.
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KL (for HD) retweeted
One of the strongest scientific arguments supporting TFC natural-history controls has just been reinforced by independent researchers at Roche, right as $QURE approaches a pivotal regulatory decision.

The argument that Enroll-HD is inherently unsuitable as a TFC comparator is becoming increasingly difficult to defend.

Btw, this is central to the reimbursement case for AMT-130.
$qure $clpt

Tfc
Tfc
Tfc
Tfc
Tfc

Godspeed to Amt 130.
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KL (for HD) retweeted
$qure $clpt

Tfc
Tfc
Tfc
Tfc
Tfc

Godspeed to Amt 130.
Interesting preprint of a study related to $QURE and other HD trials. Still needs to be peer reviewed. Would love feedback from statisticians.

medrxiv.org/content/10.648…
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