I love the many ways my book, featured in the New York Times, is helping doctors and patients across the world. Find it on Amazon, Kobo, and Barnes & Noble. Women's health and advocacy matters. #Granulomatousmastitis #author #advocate
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After contaminated public water made me sick I eventually had the opportunity to meet Erin Brockovich. She said every US home should have their own water filtration. So many things can contaminate our water like pathogens and chemicals from treatments, runoff, or releases.
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Diagnosis Detective/Tami B. (Author) retweeted
Apparently, some people in Ohio must’ve forgot @amyactonoh locked us all down in our homes like prisoners.
I didn’t.
And that’s why I voted against her.
I didn’t.
And that’s why I voted against her.
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Diagnosis Detective/Tami B. (Author) retweeted
🚨 BREAKING: President Trump says Ilhan Nur Said Elmi (aka "Ilhan Omar") may be REMOVED from office because he was sworn in under a FALSE NAME
"She used a FAKE NAME to be sworn in. I assume she must immediately have to RESIGN from Congress!"
"The Democratic Party has just Ilhan Nur Said Elmi, her real name, has openly ADMITTED to fraud, and she will not be legally allowed to be a member of that body any longer."
"If you get sworn in with a false name, I would imagine that's pretty tough to remain!"
LOCK HER UP! But ideally, in a solitary confinement facility in the Congo 😂
"She used a FAKE NAME to be sworn in. I assume she must immediately have to RESIGN from Congress!"
"The Democratic Party has just Ilhan Nur Said Elmi, her real name, has openly ADMITTED to fraud, and she will not be legally allowed to be a member of that body any longer."
"If you get sworn in with a false name, I would imagine that's pretty tough to remain!"
LOCK HER UP! But ideally, in a solitary confinement facility in the Congo 😂
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Diagnosis Detective/Tami B. (Author) retweeted
🚨🇺🇸 Trump CALLS for Ilhan Omar to RESIGN after reports she LIED about her real name
A federal court filing referred to her as Ilhan Nur Said Elmi.
Sources close to the investigation say Omar is not her real name. Her office says it is.
When asked if she married her brother, y knowledge.”
The name lines up with her ex-husband Ahmed Nur Said Elmi, which is what keeps the old rumor.
Trump is treating the court language as enough to demand she step down.
Writer: Lucas
A federal court filing referred to her as Ilhan Nur Said Elmi.
Sources close to the investigation say Omar is not her real name. Her office says it is.
When asked if she married her brother, y knowledge.”
The name lines up with her ex-husband Ahmed Nur Said Elmi, which is what keeps the old rumor.
Trump is treating the court language as enough to demand she step down.
Writer: Lucas
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It's not easy and you do become less present in everything. This painful breast condition that can initially present as breast cancer affects everything, from your career, to love life, to kids, every day tasks, and more. #Granulomatousmastitis #breastcancerawarenessmonth
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Christina Applegate needs me. I figured out my own medical mystery after being dismissed. A pathogenic bacteria, that rarely detects, was to blame. I helped my mom get properly diagnosed; it wasn't "headache syndrome". She had a brain tumor and intracranial hypertension.
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Christina Applegate has shared she was misdiagnosed with MS. I can relate to the failures in our healthcare system after being dismissed by an infectious disease specialist. As for her, my best guess is she has undiagnosed Lyme Disease.
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Diagnosis Detective/Tami B. (Author) retweeted
I have never, and will never, take a COVID vaccine
Absolute rubbish IMHO
But this is also a casual reminder to some out there:
People did get cancer and have heart attacks before COVID jabs
Absolute rubbish IMHO
But this is also a casual reminder to some out there:
People did get cancer and have heart attacks before COVID jabs
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Farewell and good riddance!
Thank you to everyone who stood with me over the years. It’s been a scary journey but I have always been grounded in my work and ability to provide exemplary service to my constituents. Trump and his administration have been after me since I arrived in Congress. I have always stood up to him and that will never change. The pedophile protector will never silence me.
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I'll be so glad when midterms are over with. I am tired of the political ads in my mailbox. I'm tired of the political ads on my TV. It's like 24/7 in our face. What a waste in so many ways...trees, money, time...
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Many women suffering from the disease are also scared to get a flare after a mammogram too. What should be a cancer screening tool becomes something so scary and often rejected.
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Had I not done the research myself and became my best advocate after I was diagnosed with Granulomatous Mastitis and dismissed by a doctor then I would've had an unnecessary mastectomy. To listen to the Kevin MD podcast interview click here: podcasts.apple.com/us/podcast/unr…
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Diagnosis Detective/Tami B. (Author) retweeted
A culture grew diphtheroid bacteria, and an infectious disease specialist dismissed it as a contaminated sample or normal skin flora. Gene sequencing months later showed it was behind a rare chronic inflammatory breast disease.
The patient, Tami Burdick (@Tami1501), says that opportunity. Proper treatment came 7 long months later instead of early on.
Here is the sequence she describes.
She found a hardened area in her right breast during a self-exam and called her doctor right away. A mammogram, an ultrasound and a core needle biopsy scored BI-RADS 5, highly suspicious for breast cancer. It wasn't cancer. Then came painful, draining abscesses.
She had done her own research before the infectious disease appointment and says she was probably better informed about the condition than the specialist was. The specialist did agree to some tests, including urinalysis and blood work. The finding that got dismissed was the diphtheroid bacteria in her original culture. With the right testing, she says, they would have learned the bacteria was pathogenic to humans.
She then found a pathology test on her own, gene sequencing. A surgical breast oncologist told her without hesitation, "Let's go ahead and do this test." It named the bacteria, Corynebacterium kroppenstedtii.
Working backward by process of elimination, she traced it to a hotel shower on a business trip. Her doctor, in an interview they did together, said that route is possible but not as common, and that she would expect to see more of these infections where there is flooding, sewage breaks, oceans or polluted lakes.
Treatment was 9 months of doxycycline after susceptibility testing, a cleanup surgery at the 6-month mark of antibiotic therapy, and a wound vac for about 6 weeks, which she called probably the worst part of it. Wound care was almost 24/7.
Her advocacy list from the conversation:
1. Form the best health care team you can, and keep getting second and third opinions until you are comfortable you have partnered with the right one.
2. Do your own research, because doctors have a lot of patients and will not be the experts in everything.
She is not blaming doctors. She points to medical networks that pressure clinicians to see as many patients as possible in a short amount of time.
Her closing advice: "Always be your best advocate."
Listen to the full conversation on The Podcast by KevinMD. Link in the replies.
Search "The Podcast by KevinMD" wherever you listen to podcasts.
What was the result in your own care that someone dismissed as nothing?
#ThePodcastbyKevinMD #RareDisease
The patient, Tami Burdick (@Tami1501), says that opportunity. Proper treatment came 7 long months later instead of early on.
Here is the sequence she describes.
She found a hardened area in her right breast during a self-exam and called her doctor right away. A mammogram, an ultrasound and a core needle biopsy scored BI-RADS 5, highly suspicious for breast cancer. It wasn't cancer. Then came painful, draining abscesses.
She had done her own research before the infectious disease appointment and says she was probably better informed about the condition than the specialist was. The specialist did agree to some tests, including urinalysis and blood work. The finding that got dismissed was the diphtheroid bacteria in her original culture. With the right testing, she says, they would have learned the bacteria was pathogenic to humans.
She then found a pathology test on her own, gene sequencing. A surgical breast oncologist told her without hesitation, "Let's go ahead and do this test." It named the bacteria, Corynebacterium kroppenstedtii.
Working backward by process of elimination, she traced it to a hotel shower on a business trip. Her doctor, in an interview they did together, said that route is possible but not as common, and that she would expect to see more of these infections where there is flooding, sewage breaks, oceans or polluted lakes.
Treatment was 9 months of doxycycline after susceptibility testing, a cleanup surgery at the 6-month mark of antibiotic therapy, and a wound vac for about 6 weeks, which she called probably the worst part of it. Wound care was almost 24/7.
Her advocacy list from the conversation:
1. Form the best health care team you can, and keep getting second and third opinions until you are comfortable you have partnered with the right one.
2. Do your own research, because doctors have a lot of patients and will not be the experts in everything.
She is not blaming doctors. She points to medical networks that pressure clinicians to see as many patients as possible in a short amount of time.
Her closing advice: "Always be your best advocate."
Listen to the full conversation on The Podcast by KevinMD. Link in the replies.
Search "The Podcast by KevinMD" wherever you listen to podcasts.
What was the result in your own care that someone dismissed as nothing?
#ThePodcastbyKevinMD #RareDisease
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70% of women have reported experiencing medical gaslighting or being dismissed by doctors, and unfortunately I'm part of that percentage. Always be your best advocate. So blessed my book is helping doctors and patients around the world.
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