Taylor MacLean retweeted
Great debate tonight at the dinner for #SVIM2024. Impactful basic and clinical research presentations with personal stories of SVD that will stay with me throughout my career. @AdditionalVent
0
3
10
568
Taylor MacLean retweeted
@scott_leezer “We are fine until we’re not okay, it happens so fast.” We need a sense of urgency and advocacy to help those with CHD now and for a long time in the future
0
1
3
88
Taylor MacLean retweeted
Full house bright & early this morning at @AdditionalVent #SVIM2024 to hear from patients/families with #chd and @DrKeilaLopez for discussion on health equity, mental health, behavioral cardiology, & impact of drivers of health on brain connectivity from fetal cards to ACHD 🫡
1
3
12
515
Kicking off the Single Ventricle Investigator Meeting 2024 today in Denver! Ready for an exciting few days 🔬🧬🫀 @AdditionalVent #SVIM2024
0
2
14
722
Taylor MacLean retweeted
We're just one year away from the Single Ventricle Investigator Meeting 💫
#SVIM2024 convenes Oct 17-19 in Denver, CO!
Don't miss out on this incredible opportunity to connect with multidisciplinary researchers & clinicians in the #singleventricle space! cvent.me/WvqEDk
#SVIM2024 convenes Oct 17-19 in Denver, CO!
Don't miss out on this incredible opportunity to connect with multidisciplinary researchers & clinicians in the #singleventricle space! cvent.me/WvqEDk
0
3
10
590
As his patient, his former employee, & an overall huge fan of @akshaydesaimd - this is THE COOLEST! Hope to see a few video clips circulating after this session at #HFSA2023 🫀 🚲 Love the interactivity, the creativity, and the concept 👏🏻 @NirUrielMD @KatyFraser5
Wake up your mind & body with @Abbottcardio at an experiential learning event at #HFSA2023: A New Spin™ on Heart Failure.
@NirUrielMD & @akshaydesaimd will use stationary bikes to simulate heart failure symptoms. Spots are limited, Register here: cvent.me/LQWnmE
1
1
1
259
Taylor MacLean retweeted
Great to see @NKasparian empowering individuals living with #SVHD on how to bring up mental health with their care teams. It’s a team effort. #SVPatientDay @FontanOutcomes
1
4
17
1,045
Taylor MacLean retweeted
With $2.25M, how would YOUR team tackle single ventricle sequelae? 💭💡 #fundingopportunity #singleventricle @AHAScience
Learn more and apply: ow.ly/isYm50PJ1xy
📆 Pre-Proposals (LOIs) are due December 19th!
Learn more and apply: ow.ly/isYm50PJ1xy
📆 Pre-Proposals (LOIs) are due December 19th!
0
6
12
2,536
Taylor MacLean retweeted
👀 We've been cooking up an exciting collaborative opportunity for the field, and we can't wait to share! Stay tuned for something BIG - announcement coming tomorrow❗#fundingopportunity #singleventricle
2
4
25
2,338
Taylor MacLean retweeted
We're deeply sorry to hear of the loss of Amy Silverstein, who died at 59 on Friday. Amy was a two time heart transplant recipient, brilliant author, and tireless advocate for #truthintransplantation. Her fight goes on, and her work will not be forgotten.
cbsnews.com/video/passage-…
cbsnews.com/video/passage-…
5
30
162
33,731
Taylor MacLean retweeted
“Standing on the edge of death now, I feel compelled,” writes Amy Silverstein (@ajsilverstein16), “to use my experience in the transplant trenches to illuminate and challenge the status quo.” nyti.ms/3A5qIi2
43
331
1,108
248,776
Taylor MacLean retweeted
Impactful new initiative @CincyChildrens directed by @NKasparian supporting physical AND mental health of patients and families affected by #CHD 👏👏
x.com/CincyChildrens…
x.com/CincyChildrens…
We’re thrilled to announce the creation of the Heart and Mind Wellbeing Center! The center was created to provide emotional support and mental healthcare tailored specifically for patients with congenital heart disease and their families. cincinnatichildrens.org/service/h/hear… #mentalhealth
1
2
10
1,085
Taylor MacLean retweeted
Very excited & proud to publish in @JAMACardio our study of remote hypertension and cholesterol management in more than 10,000 patients @BrighamWomens, bringing specialty care to diverse patients at scale & improving clinical care bit.ly/3zWmBW7, bit.ly/3WZd0b0
7
36
193
Taylor MacLean retweeted
Wanna take a sec to compliment @AdditionalVent for the ways they’ve connected the physicians & researchers with patients @ #SVIM2022. Everyday btw sessions they play these messages from the families about their hopes & fears. It’s emotional. It’s real. It’s motivating. Thank you.
1
3
20
Taylor MacLean retweeted
It's a beautiful day in Baltimore, MD!
#SVIM2022 kicks off today at 4 PM with keynotes from @jameson_rich, @kk_does_science, Michel Puceat & @allen_kiona - followed by a fireside chat on #singleventricle funding landscape
Check in 2-8 PM - See you soon!
cvent.me/3PD9lD
#SVIM2022 kicks off today at 4 PM with keynotes from @jameson_rich, @kk_does_science, Michel Puceat & @allen_kiona - followed by a fireside chat on #singleventricle funding landscape
Check in 2-8 PM - See you soon!
cvent.me/3PD9lD
0
3
15
Grateful to be 1 in a million 🙏🏼🫀♻️
In the organ donation & transplant community, scars tell the story of second chances thanks to an organ donor’s selfless gift of life. We’re honoring & celebrating #1MillionTransplants in the U.S. with these & more stories at LivingItForward.org #LivingItForward #DonateLife
2
7
28
Taylor MacLean retweeted
I hope to see you all there! So excited to share these two amazing initiatives where I am honored to spend my time.
Don't miss it! We're sponsoring an information fair & happy hour all about #ProjectSingular & @FontanOutcomes - two game-changing innovations in the #singleventricle space! REGISTER ow.ly/mYmk50KrnYs
📍Join us at #Cardiology2022 Sept 1st at 4PM PT
x.com/HeartCare4Kids…
0
2
5
Taylor MacLean retweeted
Many thanks to @armish for amplifying this important initiative!
We're seeking photos & perspectives from #singleventricle patients & parents that would like to share their stories with our research community at #SVIM2022 ➡️ forms.gle/39fto2KDp2k2u1…
x.com/armish/status/…
We're seeking photos & perspectives from #singleventricle patients & parents that would like to share their stories with our research community at #SVIM2022 ➡️ forms.gle/39fto2KDp2k2u1…
x.com/armish/status/…
Hey #HLHS (or single-ventricle) parents/friends! Do you want to tell your story to a large group of amazing scientists who are actively researching ways of making our lives better?
Here is your chance: docs.google.com/forms/d/e/1FAI…
H/T: the amazing @AdditionalVent / #SVIM2022 team
0
2
2


























