Hey VEDS Movement community. Did you know there are multiple runners in today's NYC Marathon running for YOU? ❤️We've introduced you to a bunch over the last few weeks, but David's story is extra amazing.

At 66, David Barnes Williamstown, MA, is running his first marathon IN 40 y! David's wife and two of his three daughters live with VEDS

❤️ We’re cheering David on every step of the way! Let's share our applause in comments. Go David, go!

Read David's story: marfan.org/2026/10/28/a-m…

#TeamVictory #NYCMarathon #VEDS #TheMarfanFoundation

Happy Halloween from the Mass General Brigham Aortic Center

Are you interested in learning more about school wellness, no matter your role? Check out the free @ProjectHealthySchools Wellness Webinar on November 18. Register for the whole day or for individual sessions. This opportunity is open to all! linktr.ee/PHS123

This is Ania’s fourth marathon of 2026! With two daughters and other family members living with Marfan syndrome, this race is deeply personal. “I really want to spread awareness. I’m running for all of them and for the ones we don’t know yet,” she says. 💜

You can support Team co/Gt0ChhkAuc

Looking to positively change your life (even just a little bit)? Check out the habits listed in the graphic. What 1 - 2 habits can you work on this month to improve your well-being? @ProjectHealthySchools

Team Victory is gearing up for the 50th NYC Marathon a week from today.

After nearly 40 years, David Barnes is lacing up for another marathon — and he can’t wait for Nov. 1! This time, he’s running for family. 💜

"My wife and two of my daughters live with the challenges of everal other members of my family," he says. "As such, anything that I can do to help is worth the effort. I run for them, and for all others afflicted with connective tissue disorders."

Go David!!

@nyc

#TheMarfanFoundation #TheVEDSMovement #Marfan #LoeysDietz #VEDS #VEDSActionMonth

Thank you Dr. O’Gara and Dr. Carabello for joining us at Mayo and for sharing your experiences, insights. It was a privilege to learn from you both! @MayoCVFellows 🫀

In this week’s #EaglesEyeView, @keaglemd looks at the 🆕 @ACCinTouch Scientific Statement on Exercise Prescriptions for Cardiovascular Health in Adults. 🎧Listen to the episode here: bit.ly/4zPYLYn

Because every child living with Marfan, Loeys-Dietz, VEDS, Stickler or a related condition deserves a bright future.

Support the 2026 Marfan Foundation Research & Education drive:
marfan.org/impact

Right now, we'll triple your impact, thanks to a generous matching gift. If yu'll have a $75 impact! And 83 cents of every dollar goes right to our mission - that's 8 cents more than the average outstanding non-profit.

#KnowConnectThrive #TheMarfanFoundation #TheVEDSMovement #LoeysDietzSyndromeFoundation #SticklerCircle

Congrats to Glen Rice for being inducted into the College Basketball Hall of Fame last night! #GoBlue

Tomorrow, Friday 10/23, is the big day. Wear Red, and show us your V hands! Tell the world why the V Matters to you during VEDS Action Month! Every story matters!

Post your photo in the comments with the hashtag, #TheVMatters. Tag the VEDS Movement or send your images to ogether, we can raise awareness one photo at a time!

Here's a 2025 throwback to our Marfan Foundation Board Chair Bert Medina showing his support.

We recently convened researchers and clinicians from around the world in Barcelona for Science in Spain. 🔬

Meet Emily Bramel, one of a small group of early-career researchers selected to receive a scholarship to attend the four-day conference in Barcelona. She found that a gene n may make the aortic root especially vulnerable to aneurysm in Loeys-Dietz syndrome.

Learn more: marfan.org/2026/09/28/mee…

Research is unlocking new possibilities for people living with Marfan and related conditions. 💜 Help move that work forward at marfan.org/impact

#ScienceinSpain #LoeysDietz #LoeysDietzSyndromeFoundation #TheMarfanFoundation #Research&Education

In this week’s #EaglesEyeView, @keaglemd discusses continued #HealthDisparities in CV clinical trials, left SGB & a reduced incidence of postoperative #AFib in patients undergoing #cvCABG, managing resistant #Hypertension, & more.

🎧 Tune in here: bit.ly/3TBrW2g

Tune in to this week’s #EaglesEyeView as Dr. @keaglemd looks at:

✅ ACC/AHA Joint Perioperative Guidelines
✅ Atenolol and MACE Risk
✅ Yoga and VPCs
✅ DECIPHER & CMR

🎙️ bit.ly/47Mtt8Q #CardioX

Instead of starting things off on a negative foot, try a "Thank you" instead of an "I'm sorry". It can change the whole paradigm. @ProjectHealthySchools

It's Stickler Syndrome Awareness Week, and we're proud to continue welcoming more and more members of the Stickler community to the Marfan Foundation family.

Meet Lissa, whose son Leo lives with Stickler syndrome. “This news was a complete blow at the time,” she said. “This syndrome was not hereditary for us. So, I just dove right into the only thing I could control at that time: researching relentlessly and getting him every possible support. ‘Mama lion mode’ was activated!”

Read more of the family's story: marfan.org/blog/stickler-…

#SticklerSyndrome #Stickler #SticklerAwarenessWeek

Dr. @keaglemd looks at how higher whole-grain intake was associated with improvements in multiple cardiometabolic risk factors in a meta-analysis of randomized trials.

Hear more insights in this week’s #EaglesEyeView podcast. 🎧 Listen now: bit.ly/46Yyye0 #CardioX

During the first days of this VEDS Action Month, watch on demand Dr. Hal Dietz's recent VEDS research update. #TheVMatters #VEDS #TheVEDSMovement #VEDSActionMonth

youtube.com/watch?v=AwN8hR…

Our Marfan Foundation family lives in every corner of the globe. That's why we brought our mission to Barcelona, Spain today with our first-ever patient community symposium there--connecting community members with experts and fostering local friendships.

Read more: marfan.org/2026/10/03/key…

#Marfan #LoeysDietz #VEDS #Barcelona #Spain #TheMarfanFoundation

Science in Spain starts in a few days! Meet Andrea Vosberg, one of a small group of early-career researchers selected to receive a scholarship to attend the four-day conference in Barcelona. She is exploring the Impact of Attention Deficit Disorder (ADHD) Among Children with icenter Study from CLARITY.

Learn more: marfan.org/2026/09/28/mee…

Research is changing what we know—and what’s possible—for people living with Marfan and related conditions. 💜

If you'd like to support research, visit marfan.org/impact

#Marfan #Marfans #MarfanSyndrome #ADHS #CLARITY #Research #ResearchScience