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The 2026 PCD Patients Conference will take place in one month on November 13th (evening) and 14th (morning). Registration is opened and the final program is now available in English, French and German!
beat-pcd.org/events/2026/11…
beat-pcd.org/events/2026/11…
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Just one week to go until the 2026 PCD Patients Conference! Find everything you need on our dedicated page: beat-pcd.org/patientconfere…
There’s still time to register. The final programme and presentation slides are also available to download in multiple languages.
There’s still time to register. The final programme and presentation slides are also available to download in multiple languages.
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BEAT-PCD (ERS CRC) retweeted
Extremely saddened by the news. We have been lucky to collaborate closely with Catherine in the Living with PCD study and we value incredibly her contributions in the field of PCD. Our thoughts are with all her family and friends and @PCDAustralia
BEAT-PCD extends its heartfelt condolences to her family, friends and the wider PCD community. Catherine was an inspiring leader in patient participation and advocacy, and her dedication and impact will be profoundly missed. Our thoughts are with everyone who knew and loved her.
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BEAT-PCD extends its heartfelt condolences to her family, friends and the wider PCD community. Catherine was an inspiring leader in patient participation and advocacy, and her dedication and impact will be profoundly missed. Our thoughts are with everyone who knew and loved her.
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As part of the October 2026 PCD Awareness Campaign, BEAT-PCD brought together patient-organisation representatives from across the globe for an interactive webinar. The replay is now available on our Youtube channel youtu.be/ZV71lCs7270
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Our global PCD community continues to advance research and care through collaboration across borders: onlinelibrary.wiley.com/doi/10.1002/pp…
Proud that @beatpcd, @ErnLung & @PCDFoundation brought the community together through our global conference. Together, we make progress possible!
Proud that @beatpcd, @ErnLung & @PCDFoundation brought the community together through our global conference. Together, we make progress possible!
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The manuscript « Mapping challenges in the delivery of care for primary ciliary dyskinesia: an international survey on barriers and priorities » is now available on ERJ Open research doi.org/10.1183/231205…
@bruna_rubbo @mgoutaki @ClaudiaKuehni @JaneSLucas1 @_Claire_Jackson
@bruna_rubbo @mgoutaki @ClaudiaKuehni @JaneSLucas1 @_Claire_Jackson
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The systematic review of AI and digital-automated tools for PCD lead by @beatpcd WP3 P. Kouis @mathieu_bottier, N. Rumman & @_Claire_Jackson with @Shoemelia @mgoutaki in collaboration with CRC Connect is now available in ERJ Open Res doi.org/10.1183/231205…
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BEAT-PCD (ERS CRC) retweeted
🫁 October is #PCDAwarenessMonth.
PCD is a rare genetic condition that can affect the lungs, ears and sinuses. 🫁👂👃
Learn more about symptoms, diagnosis and treatment:
👉 europeanlung.org/en/information…
@PCD_UK @PCDAustralia #PCD #RareDisease #LungHealth
PCD is a rare genetic condition that can affect the lungs, ears and sinuses. 🫁👂👃
Learn more about symptoms, diagnosis and treatment:
👉 europeanlung.org/en/information…
@PCD_UK @PCDAustralia #PCD #RareDisease #LungHealth
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Prof @mgoutaki and @andrea_fernro will present the Living with PCD study, an international participatory research study @ISPMBern @PCD_ispm that collects evidence directly from people with PCD on Wednesday 18th November 2026 5:30 PM CET beat-pcd.org/events/2026/11…
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The video from the Global PCD Conference 2026 Recap Webinar is now available on the @PCDFoundation YouTube at the following link: youtu.be/WUGizp7-Fts
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BEAT-PCD (ERS CRC) retweeted
What should be the next target ? 1000 followers ?
A huge thank you to everyone who follows BEAT-PCD, supports our work, and helps us share information about primary ciliary dyskinesia (PCD).
Let’s keep reaching out to the community and spreading the word. facebook.com/profile.php?id…
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A huge thank you to everyone who follows BEAT-PCD, supports our work, and helps us share information about primary ciliary dyskinesia (PCD).
Let’s keep reaching out to the community and spreading the word. facebook.com/profile.php?id…
Let’s keep reaching out to the community and spreading the word. facebook.com/profile.php?id…
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Help us grow the BEAT-PCD community by inviting your friends, family, and anyone interested in PCD to follow our Facebook page.
The more our community grows, the more we can share information, resources, and updates with people.
facebook.com/profile.php?id…
The more our community grows, the more we can share information, resources, and updates with people.
facebook.com/profile.php?id…
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BEAT-PCD has reached the final step in its digital transformation!
Explore our new, simplified website at beat-pcd.org for faster access to resources, research, and community updates.
Explore our new, simplified website at beat-pcd.org for faster access to resources, research, and community updates.
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Researchers from @uni_muenster and @harvardmed have identified a previously unknown transition zone linker whose defects cause structural and functional abnormalities in motile cilia—revealing a new genetic mechanism underlying PCD: science.org/doi/10.1126/sc…
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We are live for the Global PCD conference 2026 highlights organized by @PCDFoundation and recording will be available shortly after the webinar. @Shoemelia @RunningOnO2
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A busy #ERSCongress2026 for BEAT-PCD! From our 60–65-strong Management Committee meeting to PCD posters, oral presentations, guidelines on diagnosis & nasal NO screening, and a dedicated PCD symposium - plus a great chance to connect with colleagues from around the world.
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We would like to remind everyone that the BEAT-PCD meeting during the ERS congress will take place today at 14:00 to 16:45 CET, in Room 3.12, (Theatre Room), Hall CC3 at the conference centre.
beat-pcd.squarespace.com/events/2026/9/…
beat-pcd.squarespace.com/events/2026/9/…
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