How can nutrition and supplements impact #mito? Find out during our Ask the Mito Doc webinar on Nov. 18, at 7 PM ET with Mark Tarnopolsky, MD, PhD, FRCP(C). Bring your questions for Nutrition, Supplements & New #MitochondrialDisease Therapies.
umdf.secure.nonprofitsoapbox.com/amdnov18
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You don’t have to navigate #mitochondrialdisease alone. Connect with patients and families through UMDF’s weekly virtual Support Meetings. Check our events calendar for login details and join us. umdf.org/events-calenda…
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Join us Nov. 9, at 12 PM ET for the Bench-to-Bedside webinar, #LHON: Gene Therapy, Visual Recovery, and Clinical Outcomes moderated by Zuela Zolkipli Cunningham, MD, and Fernando Scaglia, MD, with speakers Patrick Yu-Wai-Man, PhD, and José-Alain Sahel, MD. umdf-mitou.teachable.com/p/mitou-umdfbtb
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Our #mito community showed up in a big way for the Energy for Life Walk - Chicago! Check out the photos and relive some of the day's best moments.
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To all the caregivers in our #mito community, November is #NationalFamilyCaregiversMonth, and we're celebrating you! Explore the ways you can connect with UMDF. umdf.org/get-support/
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Way to go, UMDF’s Team Activate! These dedicated runners took on the 2026 Bank of America Chicago Marathon in support of UMDF, raising more than $100,000 for the #mitochondrialdisease community. Interested in joining Team Activate in 2027? Email Kelsi at kelsi.martinez@umdf.org.
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Happy #NationalAuthorsDay to all the authors in our #mito community! Today, we're giving a special shoutout to UMDF Founder and Chairman Emeritus Chuck Mohan and his book, The Donkey and The Cart. To pre-order your copy, visit: umdf.org/the-donkey-and…
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We’re wishing our community a safe and #HappyHalloween 🎃 UMDF's Director of Patient Support & Community Programs, Margaret Moore, is celebrating with her four-legged friend, Daniel, who's dressed up as Elmo!
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Support is just a click away! Join one of UMDF's upcoming Virtual Support Meetings where patients and families can connect, share experiences, and find encouragement in the #mitochondrialdisease community. umdf.org/events-calenda…
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This #BlindnessAwarenessMonth, we’re shining a light on Leber Hereditary Optic Neuropathy (LHON), a #mitochondrialdisease that causes sudden loss of central vision. We talked with Dr. Robin Lanzi, alongside her son Stephen, about #LHON. Learn more at umdf.org/LHON.
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Have you completed the #POLG survey? Patients and caregivers can help shape the future of #mito research by sharing their experiences in this survey from UMDF, @MitoAction, @PolGFoundation, and International Mito Patients. Complete the survey by 10/31. bit.ly/4h8klB3
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Wisconsin came together to raise awareness and funds for #mito research! Take a look at the highlights from their Energy for Life Walk at Fox River Park.
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Based on patients who have completed the ClinGen Survey in mitoSHARE, approximately 60% of people with suspected #mitochondrialdisease also report vision loss. This #BlindnessAwarenessMonth, explore UMDF’s types of #mito pages to learn more.
umdf.org/what-is-mitoch…
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There’s just ONE Energy for Life Walk left for 2026 in Orlando, FL! Join us on Saturday, November 7 at Bill Frederick Park (Pavilion 6 - 3401 South Hiawassee Road) at 9 AM ET as we come together to raise awareness and funding for #mitochondrialdisease. energyforlifewalk.org/orlando
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Reminder: The next Ask the Mito Doc webinar is on Tuesday, October 27 at 7 PM EST. Join us to learn more about Understanding Access to Therapies: Compassionate Use, Expanded Access, and Off-Label Treatment in #MitochondrialDisease. To register, visit: bit.ly/4ywhrvz
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A community that understands your journey starts here. Connect with patients and families through weekly Virtual Support Meetings hosted by UMDF to share experiences and find encouragement in the #mitochondrialdisease community. umdf.org/events-calenda…
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Congratulations to Dr. Bruce Cohen of @AkronChildrens on receiving the Hower Award from the @ChildNeuroSoc! This recognition honors Dr. Cohen’s contributions to the field and his continued dedication to improving the lives of individuals affected by #mitochondrialdisease.
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We’re grateful to everyone who joined us for UMDF’s Energy for Life Walk – Kansas City! Every step you take helps raise awareness and support the #mito community. Scroll through to relive some of our favorite moments from this special day!
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Congratulations to @Mighty_Tx and @ucb_news on being named Industry Innovator Honorees as part of @RareDiseases Rare Impact Awards! This well-deserved recognition celebrates both companies’ ongoing contributions to advancing care for people living with #mitochondrialdisease.
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Thank you to UMDF Ambassador, Jenny Hobbs, for sharing her #mito journey and helping spread the word about the upcoming Energy for Life Walk – Charlotte on @wcnc this morning!  There’s still time to join us and register for UMDF's Charlotte Walk on 10/24.
youtube.com/watch?v=0YjCoT…
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