In partnership w/ @NTMinfo we are kicking off our #WorldBronchiectasisDay webinar series with @ProfJDChalmers on February 27th at 1pm ET. Use this link to register: zoom.us/webinar/regist…
0
6
19
Register today for Rare Disease Day virtual race: runsignup.com/Race/MD/Silver…
You can do the race any time in February. Profits from this event will be split between the PCD Foundation and Running On Air.
You can do the race any time in February. Profits from this event will be split between the PCD Foundation and Running On Air.
0
1
1
The last day of February is #RareDiseaseDay. This year that is February 28th. We will be sharing rare disease facts throughout February to help raise awareness.
0
1
6
This is what makes primary ciliary dyskinesia so devastating, the lack of movement, or improper movement, which then allows contamination of the lungs and infections.
#LungFacts #RunningOnAir
#LungFacts #RunningOnAir
1
2
4
We only have a few weeks left to get this bill passed. We need everyone to call on December 3rd or 4th preferably, but if those days don't work just call next week!
Get more info: runningonair.net/soar-act
Get more info: runningonair.net/soar-act
0
0
1
26 days to reach our 1st goal of $5,000 in donations through Giving Tuesday. If we reach that goal we will get an additional $1,000.
You can donate here: givesignup.org/DonationWe.../…
OR you can register for our virtual race &/or purchase a shirt &/or a hat: runsignup.com/Race/MD/Baltim…
You can donate here: givesignup.org/DonationWe.../…
OR you can register for our virtual race &/or purchase a shirt &/or a hat: runsignup.com/Race/MD/Baltim…
0
1
1
On this election day maybe we all need to go for a run.
#DailyInspiration #RunningOnAir #Celebrating10Years
#DailyInspiration #RunningOnAir #Celebrating10Years
0
1
3
To all those crossing the starting line today, especially in the @nycmarathon .
#DailyInspiration #RunningOnAir #Celebrating10Years
#DailyInspiration #RunningOnAir #Celebrating10Years
0
0
5
It’s been a busy year and we’re not done yet. We just sent out our inaugural newsletter:
mailchi.mp/runningonair.o…
If you didn’t receive it you can sign up here: runningonair.net/mailing-list
mailchi.mp/runningonair.o…
If you didn’t receive it you can sign up here: runningonair.net/mailing-list
0
1
6
From our President: When my sister & I were 1st diagnosed w/ PCD & Bronchiectasis, a doctor said, "No one would have guessed they had such a serious disease given how active they are."
What have you done that people said you couldn't?
#DailyInspiration #RunningOnAir
What have you done that people said you couldn't?
#DailyInspiration #RunningOnAir
0
1
5
10 years ago I got up early on a chilly Sunday morning, and did the @ArmyTenMilerATM wearing my new shirt & supplemental oxygen with my friend Leslie. I missed a cutoff time where they close off part of the course. I was happy I'd shown up and did as much as I did - 9.5 miles.
0
2
3
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
2
3
10 years ago today my husband Ed and I were down in Virginia preparing for the Army Ten Miler the next morning. We went out to Target and I bought a white t-shirt and a Sharpie and wrote RunningOnAir.net on the bottom in the front and back.
0
1
1
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
3
4
10 years ago today Running On Air came into being. After my TV interview the day before I realized I could make a difference. Running On Air has been making a difference ever since & we're only just beginning.
View our 10th Anniversary Impact Report: drive.google.com/file/d/19Uuv7h…
View our 10th Anniversary Impact Report: drive.google.com/file/d/19Uuv7h…
0
2
3
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
6
8
10 years ago today I was interviewed by @WMAR2News about running the @ArmyTenMilerATM while wearing supplemental oxygen. My friend Wayde, an experienced publicist, was there and is the one running with me.
youtube.com/watch?app=desk…
#RunningOnAir #Celebrating10Years
youtube.com/watch?app=desk…
#RunningOnAir #Celebrating10Years
0
3
3
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
5
7
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
4
4
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
2
3
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
4
4
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
2
5
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
3
4
In 1 week we celebrate our 10th Anniversary!!
It's been a crazy busy week, and even though #WorldOxygenDay is over, the efforts to pass the Supplemental Oxygen Access Reform (SOAR) Act are not. If you didn’t call yesterday call today or tomorrow.
#RunningOnAir #Celebrating10Years
It's been a crazy busy week, and even though #WorldOxygenDay is over, the efforts to pass the Supplemental Oxygen Access Reform (SOAR) Act are not. If you didn’t call yesterday call today or tomorrow.
#RunningOnAir #Celebrating10Years
0
3
4
October is #PCDAwareness Month. As we do every October, we'll be sharing #PCDFacts as a way to raise awareness. Sharing these facts helps others learn about PCD.
0
4
5
It's #WorldOxygenDay! I called, have you?
Call your members of Congress today & ask them to cosponsor & pass the Supplemental Oxygen Access Reform (SOAR) Act (bill # S. 3821 & H.R. 7829) THIS session.
Find members here: congress.gov/members/find-y…
Share this post & tag you members.
Call your members of Congress today & ask them to cosponsor & pass the Supplemental Oxygen Access Reform (SOAR) Act (bill # S. 3821 & H.R. 7829) THIS session.
Find members here: congress.gov/members/find-y…
Share this post & tag you members.
0
6
6
Tomorrow is #WorldOxygenDay. Are you ready to call your members of Congress?
Find your members of Congress & their phone numbers using this link: congress.gov/members/find-y…
For more information you can watch this webinar from last Wednesday: youtu.be/d8r2rRtx6wI?si…
Find your members of Congress & their phone numbers using this link: congress.gov/members/find-y…
For more information you can watch this webinar from last Wednesday: youtu.be/d8r2rRtx6wI?si…
0
3
7
Are you ready to call your members of Congress Wed to ask them to COSPONSOR and to pass the Supplemental Oxygen Access Reform (SOAR) bill this session? Watch this video to find out who to call, how to call and what to say. youtu.be/d8r2rRtx6wI?si…
#SOARbillO2 #WorldOxygenDay
#SOARbillO2 #WorldOxygenDay
0
3
2
#WorldOxygenDay is in 2 days! Are you ready to call your Federal reps on Oct 2nd & ask them to COSPONSOR the Supplemental Oxygen Access Reform (SOAR) Act?
Let's flood Congress with calls. Check our website for updates & info: runningonair.net/world-oxygen-d…
#SOARbillO2
#SOARbillO2
Let's flood Congress with calls. Check our website for updates & info: runningonair.net/world-oxygen-d…
#SOARbillO2
#SOARbillO2
0
4
5
#WorldOxygenDay is in 3 days! Are you ready to call your Federal reps on Oct 2 & ask them to COSPONSOR the Supplemental Oxygen Access Reform (SOAR) Act?
Let's flood Congress with calls. Check our website for updates & info: runningonair.net/world-oxygen-d…
#SOARbillO2
Let's flood Congress with calls. Check our website for updates & info: runningonair.net/world-oxygen-d…
#SOARbillO2
1
3
4