The European Rare Diseases Research Alliance (ERDERA) kicks off with a bold vision to make Europe a global leader in rare diseases research and innovation.

Read ERDERA’s press release🗞️​ bit.ly/3zgaZA0

🌍💙 #ERDERA #RareDiseases #ResearchInnovation

🚀 We're hiring! Join us at ERDERA as a Project Manager for Rare Diseases. Two exciting roles available:
Funding & Education
Data & Knowledge Hub
✅Apply now: ejprarediseases.org/careers/
📹 Hear from our team about their experience: youtu.be/S9-S-412DM8

🚨 We're excited to announce Virginie Bros-Facer, PhD, as our new CEO @EURORDIS, starting March 2024! With a heart for progress and a wealth of experience, she's set to amplify the voice of the rare disease community in Europe. Cheers to a new chapter!

ℹ️ eurordis.org/new-ceo-announ…

The EJP RD Pillar 2 developers concluded a 2-day hackathon in Frankfurt, Germany 🇩🇪 in preparation for the first release of the Virtual Platform: an ecosystem of connected resources for the enhancement of rare disease research.

🚨 @IRDiRC Announces The Creation of Regulatory Science Committee to Tackle Regulatory Challenges in Rare Disease Research
📰Read the press release here: irdirc.org/irdirc-announc…

💡 Do you want to discover more about how Partnerships under #HorizonEurope will be monitored in the coming years & the lessons learned from the Biennial Monitoring Report 2022?

📌 Read the latest report of the Independent Expert Group on Partnerships.

👉europa.eu/!3Gr4Vk

It is with deepest sadness we have learned about the death of our dear colleague Jordi Llinares Garcia. Jordi was the Head of Research and Innovation at the EMA & was involved in multiple aspects of the EJPRD & IRDiRC. Our sincerest condolences go out to his family and friends.

🔎Better monitoring for➕ impact⚡️of the new generation of #HorizonEU #EUPartnerships.

➡️Check out the🆕report from an independent group of experts and find out how we will assess the progress of partnerships & their contribution to 🇪🇺 priorities

👉 europa.eu/!b3TBfW

Our #RareDisease funding opportunities are designed for you and we want to hear from you to keep improving them! 📝 Complete this short survey on the Networking Support Scheme, the EJP RD funding opportunity for #networking!
Survey here: forms.office.com/pages/response…

#10YearsOfIRDiRC milestone📍: Following the reaching of the original #IRDiRC goal, new visions and goals were set up for the next decade 🎯
More information here irdirc.org/about-us/visio…
#RareDisease

#10YearsOfIRDiRC achievement 🏆: IRDiRC reached in 2017 the original goal 🎯 of 200 new therapies which was expected to be reach in 2020, so 3 years in advance!
#RareDisease

What are #RareDiseases?

What are the challenges in this research field?🔬

📽️ Discover how @EJPRareDiseases puts all these pieces together to catalyse the establishment of a European Rare Diseases ecosystem.

youtube.com/watch?v=n0EOCX…

The EJP RD Rare Disease Day Video is here! Watch EJP RD contributors answer the web’s most search questions about rare diseases: youtube.com/watch?v=n0EOCX…
#RareDiseaseDay
#RareDisease

The FDA (@US_FDA) will hold a virtual public meeting on Friday, March 5, 2021, from 9:00 a.m. to 4:00 p.m. EST to highlight strategies to support rare disease product development.
More information here: ejprarediseases.org/index.php/2021…

Up to 25 000€ granted as part of the @EJPRareDiseases ERN #Research Training Workshop Call that is now open until March 7th! The goal of the workshops is to train ERN researchers and clinicians in relevant topics on research in #raredisease-s
More info: ejprarediseases.org/index.php/trai…

Join us at #EJPRD Information Webinar organised for potential applicants to the Joint Transnational Call 2021.
📆 February 2nd, 2021
📆 Registration deadline: January 29th, 2021
More information here: ejprarediseases.org/index.php/2021…
#RareDisease #SocialScience #Healthcare

Today is the start of #EJPRD 2-day Policy Meeting in the context of a time to reflect on the current state-of-the-art and take a look forward to prepare the next steps and build together the near future of #RareDiseases community in #Europe and beyond.
ejprarediseases.org

Apply to @EJPRareDiseases ‘s Internal call for innovation project in #ClinicalTrials methodology in limited populations aiming to support collaborations among groups of experts (methodological experts, #clinicians, #patients...) More information: ejprarediseases.org/index.php/ongo…