The Annual HoFH gathering is coming up July 24-25 in San Antonio for patients and caregivers of individuals living with Homozygous Familial Hypercholesterolemia. If you or someone you know is impacted by #HoFH, join us! Travel and lodging provided: familyheart.org/event/hofh-com…
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Allison Jamison retweeted
Join us today at 6:30 pm ET.
TOMORROW! In this clinician-facing webinar, Dr. Amy Peterson will address the life-saving reasons to screen children early and will share the Family Heart resources available to support physicians and families.
Register now: familyheart.org/children-chole…
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Allison Jamison retweeted
A4: The @AmerAcadPeds recommends #cholesterol testing at age 2 with a family history of FH or #HeartDisease and 9-11 for all children. This is especially important to find and treat #HoFH ASAP.
#FHCantWait #KnowFH
#FHCantWait #KnowFH
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A3: Lowering LDL-C has a big impact on reducing cardiovascular disease risk over the life course. For every 40 mg/dL reduction in LDL that is maintained for about 5 years, a person’s risk of heart disease or events falls by 20% #KnowFH
youtu.be/co76EejedSY
youtu.be/co76EejedSY
Q3. Why is it important for people with FH to get their LDL cholesterol low as soon as possible?
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A4: The @FamilyHeartFdn is thrilled to be launching a program this week that will provide free, at-home cholesterol screening, regardless of insurance status, with an opportunity to connect with Care Navigator. #KnowFH
Q4. What, in your opinion, is the solution to improving universal cholesterol screening, especially in underserved populations?
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Allison Jamison retweeted
Today is #FHAwarenessDay! Prevent early 💗 #HeartDisease by raising awareness of familial hypercholesterolemia (FH). Together we can help save generations of families from heart disease. #KnowFH
@KAWilemon
@KAWilemon
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A8: A thoughtful answer from our new CMO Dr. Laurence Sperling! #KnowFH
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A4: We need to engage primary care. Provide accessible screening. Access to Care Navigation, or a person that can help guide treatment and support. #KnowFH
familyheart.org/care-navigatio…
familyheart.org/care-navigatio…
Q4. What, in your opinion, is the solution to improving universal cholesterol screening, especially in underserved populations?
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A2: Really, every single day should be FH Awareness Day! FH is one of the most common genetic disorders and most people have never heard of it. There are two types of FH: heterozygous and homozygous. Heterozygous is much more common, and homozygous is more severe. #KnowFH
Q2. Today is the 12th annual #FHAwarenessDay. What is familial hypercholesterolemia, and what are the types that can be inherited? #KnowFH
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A5: Elevated Lp(a) could be the hidden cause of premature cardiovascular disease. A simple blood test is all that is required. If someone tests positive for an Lp(a) disorder, family screening should be encouraged. Our Care Navigation Center can help. #KnowLpa @thefhfoundation
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I was 39 when I had a heart attack, and it took me over a decade to get the information I needed to understand that high lipoprotein(a) was a contributing factor. Unfortunately, this is an all too common story. #KnowLpa @thefhfoundation
Read my story:
FamilyHeart.org/genetics-heart…
Read my story:
FamilyHeart.org/genetics-heart…
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A6: Lp(a) levels are inherited and not driven by diet. It is not curable, but there are things you can do, such as, manage all other risk factors for heart disease & stroke. Contact our dedicated Care Navigators for possible screening at 844-434-6334. #KnowLpa @thefhfoundation
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There are 2 ways Lp(a) can be measured. Be sure to check whether your test results are in nmol/L or mg/dL. Results over 50 mg/dL or 125 nmol/L are considered high & could increase the risk for heart attack, stroke, peripheral artery disease, or calcified aortic stenosis. #KnowLpa
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I am Katherine Wilemon and I am an individual living with high Lp(a), FH, and #HeartDisease. I am also the founder and CEO of the @TheFHFoundation. Thank you all for joining! #KnowLpa
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This #FHAwarenessDay we are asking you to consider giving $30 in honor of the 30% of FH diagnosed.
To continue our work, we must raise funds from the community we serve. The more donors who give and the more dollars we raise, the more we can do. #KnowFH
familyheart.org/donate
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Raising awareness is key!! Fortunate to know so many of the beautiful faces pictured below #KnowFH
A10: Raising awareness is key! Our amazing community works hard to educate and spread the word about FH so we can find the 70% of undiagnosed. We are on a mission to save more families and more hearts – join us! #KnowFH
familyheart.org/ways-to-get-in…
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Thank you, Katherine Wilemon, for leading the charge and creating the Family Heart Foundation to help the millions of people living with FH and elevated Lp(a)! #KnowFH
A10: #FINDFH is our #PrecisionMedicine initiative to accelerate screening, diagnosis, and care for FH in partner health systems. #KnowFH @DHMCandClinics @EmoryMedicine @UTSWNews @PennMedicine @OhioHealth @NPJDigital
familyheart.org/findfh-data-pu…
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A10: A majority of #KnowFH is undiagnosed/ undertreated. Here’s what you can do:
1. Screen yourself & family members that may be at risk
2. Early & Aggressive treatment
3. Optimize ALL CV risk factors and optimize CH health per @American_Heart Life's Essential 8 metrics
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